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Rocky Mountain High

In 50 years, nothing you are doing right now is going to matter. In all likelihood, you and I will both be gone and long forgotten, simply a conglomeration of some ancient particles that were together for a short time, constituting a bag of cells and waste with an expiration date.All that matters is right now. Yes, it’s a cliché, but recently after a head clearing trip to Wyoming and Montana, it finally made sense. While there I realized how totally small and insignificant we all are. Spaces and skies so big they literally split your mind into two halves: before and after.Upon returning, I set out to redefine what was important. I work a fairly high stress job for someone with CF, 10-11 hour days, impacting incredible amounts of money and the livelihoods of others on top of CF while hardly ever taking a day off. One time I went 7 years without a week off. Yes, I’m lucky I was able to do that, but I shouldn’t have. Truly all that matters are your spouse, those 2 or 3 real friends, and …
Recent posts

Suicide Solution

I have an addictive personality. If I find something I like, I become consumed by it. Like when Chic fi-La came out with chicken salad sandwiches. I ate at least 2 a day, every day for weeks. Now I can’t stand to look at one without getting nauseated.

I know without a doubt I would be a compulsive gambler if I ever took the first step, so I don’t. Same thing with drugs…if I didn’t have a health condition….and it wasn’t illegal, I feel I would take that first step and never look back.
One thing that IS legal, and everywhere, is alcohol. The temptations growing up in a town where there was nothing to do but:
A: have sex B: get drunk and or high C: stay at home and watch TV with your parents
….were pretty serious.
But let’s be honest, I only had control over 2 of those options….
What path did I choose?
I hung out with my friends while they got drunk, or stayed at home with my parents because I knew early on that high school acquaintances and appearances were disposable. I abstaine…
Question from 3rd Street Vice President: 
Interactions with other CF patients. How do they happen? What do they lack? How are they better?

Up until we started 3rd Street, I had only associated with one other CF patient in my entire life. She lived in the same hometown with me, and we knew a lot of mutual people. I’ve met her maybe twice in person at the Great Strides walks, before she had her transplant. We broke the 6 ft rule for a photo…no masks or anything. We keep in touch through FB sometimes and are both big music fans and play guitar, so we have that connection.
The reason for my previous lack of communication with CF patients is twofold. For starters, I'm old enough to have grown up without internet and still am getting used to the idea of “online community.” So that one person was all I knew and hadn’t even thought of the internet as a means of seeking out other people with CF. The second part is I know how bad CF can be and read about it and saw statistics growing up. I d…

A change of direction

“Why is it that the words we write for ourselves are so much better than the words we write for others?"
I have the answer. It’s because we’re not worried about judgement. So far I have tried to mold, temper, and censor material for the sake of 3rd Street’s image. But really, what kind of image is that? Sedate, palatable, and vanilla? To me that means forgettable. Is that what we want?
The goal is to generate conversation, and unfortunately, the only way to do that is to have opinions which may ultimately cultivate disagreement. That’s fine. That is conversation, sharing of ideas and a springboard for empathy and ways of patients of the same viewpoints to strengthen a bond.
I was one of those brooding teenagers who wrote narratives and poetry, minus the dark clothes and bad haircut....okay I did have a bad haircut but it wasn't on purpose. I plan to revive that hobby but now for the purpose of writing about CF and my experience and perspectives.
Hopefully this change in to…

Ask Me Anything, Part 1

Question from our Vice President:

Interactions with other CF patients. How do they happen? How are they better? What do they lack?


Up until we started 3rd Street, I had only associated with one other CF patient in my entire life. She lived in the same hometown with me, and we knew a lot of mutual people. I’ve met her maybe twice in person at the Great Strides walks, before she had her transplant. We broke the 6 ft rule for a photo…no masks or anything. We keep in touch through FB sometimes and are both big music fans and play guitar, so we have that connection.
My reason for previous lack of communication with CF patients is twofold. For starters, I'm old enough to have grown up without internet and still am getting used to the idea of “online community.” So that one person was all I knew and hadn’t even thought of the internet as a means of seeking out other people with CF. The second part is I knew how bad CF could be, having read about it and saw statistics growing up. I didn…

It Keeps you Runnin'

If you haven’t seen Forrest Gump, stop reading this immediately and go watch it. I’ll wait. It is a modern cinema masterpiece, and is on many people’s lists of favorite movies, including mine, although I haven’t watched it much in recent years.
It addresses many things throughout history and how it is observed by a very entertaining character. Because of this, it speaks to people for different reasons. There is one scene that always speaks to me in regards to CF in particular. It totally hit me like a ton of bricks on probably my first few viewings in the 90s.
What is interesting is when I was describing this blog idea w/ Travis, who knows me better than anyone, couldn’t even guess which scene I was going to write about. I think that really shows the difference in perspectives in CF patients’ vs others.
The part I’m speaking of is a parallel for how I view life in general with battling CF every day. It’s when Forrest gets up from his porch, and starts running. To quote the movie:

What's Salty and Sweet, but Bitter if it Gets Hot?

Several weeks ago, I sent out a message to see if any of our board members and core team members had any questions about CF, or if they had any questions about my personal philosophy on things, from a CF patient’s perspective. I haven't received any yet, but came up with a few of my own for the general population; those who haven’t been fighting their entire lives, every day. Of course these are rhetorical. I know the answer to all is "fabulous." 

1.What is it like to be able to eat what you want without having to take a handful of pills each mealtime without having to stay in the bathroom for 3 days?

2.What do you do with all that free time on your hands when you’re not doing treatments and strapped to a vest and nebulizer? That’s a month of a CF patient’s life each year just gone. I can’t imagine what I could do with 12 months in a year. Can you?

3.What is it like to be able to go and shop for life insurance?

4.How does it feel to grow up knowing that you will probably…